John's Campaign

John’s Campaign

Family Carers as Partners in Care

This guide explores John’s Campaign and the importance of recognising family carers and other essential supporters as partners in care when their involvement is wanted and needed by the person receiving healthcare.

It explains how familiar supporters can contribute valuable knowledge about communication, behaviour, routines, pain, distress and what is normal for the individual, while making clear that carers should not be expected to take over professional healthcare responsibilities.

It includes:

• What John’s Campaign is and how it began
• Why familiar carers can be important during hospital stays
• Flexible access beyond ordinary visiting hours
• Communication, eating, drinking and familiar routines
• Consent, confidentiality and mental capacity
• Carer involvement in care and discharge planning
• Reasonable adjustments and individual needs
• What to do if access to an essential supporter is restricted
• Practical questions for patients, carers and professionals

A practical guide to supporting person-centred healthcare through meaningful partnership with the people who know the patient best.

Space to Breathe Therapy