LeDeR

Learning from Lives and Deaths

LeDeR is an NHS England service-improvement programme that reviews the health and social care received by people with a learning disability and autistic people whose deaths are notified to the programme.

This guide explains how LeDeR works, why reviews matter and how learning from individual lives and deaths can contribute to improvements in healthcare and reductions in health inequalities.

It includes:

What LeDeR is and why it exists
Who can notify an eligible death
Initial and focused reviews
Family and supporter involvement
Learning from good practice and areas for improvement
Diagnostic overshadowing
Communication and reasonable adjustments
Recognising deterioration and changes from a person’s usual presentation
Turning review findings into service improvement
What LeDeR does not replace
Practical considerations for families and supporters

A clear introduction to how learning from people’s experiences of care can contribute to safer and more equitable services.

Space to Breathe Therapy